LEBANON, Ky. (WAVE) - “My child’s Down syndrome is not going away,” mom Trina Martin said. “That is part of her DNA that’s not going to change.”

What did change this spring was Ellie’s Medicaid coverage, which helps with the things most parents take for granted. She was one of the hundreds of Kentucky Kids with Autism and or Down Syndrome who were denied a renewal during their yearly assessment, despite circumstances staying the same.

“There was no change to the actual waiver policy, and there was no change to the kids’ diagnoses and things like that,” Martin said. “But all of a sudden, they didn’t meet the level of care anymore.”

Denials hit families in all corners of the Commonwealth. Facebook groups formed, and parents like Martin began to notice a pattern.

“They were all kids. The

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