Baldivis mum Danielle Green campaigning for mandatory genetic testing when young people die suddenly

Baldivis mum Danielle Green is campaigning for coroners to perform routine genetic testing on all young people when their cause of death is unclear.

Ms Green spoke to the Sound Telegraph last year about the death of her children Sonny and Airlie from a rare genetic mutation called PPA2, which has been identified in less than 100 people worldwide.

In 2021, Ms Green and her husband Leon experienced every parent’s worst nightmare when their first child Sonny died suddenly, aged just nine months.

Ms Green had taken Sonny to Rockingham hospital to be checked out but just 30 minutes later he went into cardiac arrest. He was transferred to Perth Children’s Hospital but died a short time later.

The coroner ruled Sonny’s cause of death as unknown and it wasn’t until their daughter Airlie was bo