Colorado family's fight for livesaving medication for infant with Barth syndrome leads to FDA approval

After months of fighting, a Colorado family is breathing a sigh of relief after the FDA announced initial approval of an experimental medication helping to keep their son alive.

"Like last night, I had the idea, 'Oh, I could watch football.' (laughs) But I didn't -- I was too tired, " Madison Dryden said.

After nine months of racing the clock, that kind of peace is new for the Drydens.

"I put a countdown on my watch face, and it was counting down to Nov. 4. So, each day, I'd look and say, 'Okay, one less,'" Andy Dryden said.

They had been counting the days until the FDA decided the fate of a drug their son desperately needed to survive. Gilbert was born with Barth syndrome, a rare and often fatal mitochondrial disease.

Just days old and in heart failure, he was granted emergency acces