Jerusalem (CNN) — Yamen Al-Najjar recalls his past life – the days when he went to school and laughed regularly. Today, the 16-year-old lives with his mother in a cramped 6-square-meter room, just large enough to hold a hospital bed he seldom leaves.

“Life is hard. I am sick and in pain all the time… I feel alone, and I miss home,” he told CNN.

Yamen, who has a bleeding disorder, was medically evacuated from Gaza City with his mother to a Palestinian hospital in occupied East Jerusalem just two days before the October 7 attack in 2023.

His condition is rare, according to his mother, Haifa Al-Najjar, and his doctors, who have struggled to manage his symptoms and been unable to get him the treatment he needs, even in East Jerusalem.

Al-Najjar has been working to get her son medically ev

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