'My son's teeth didn't grow back before worst diagnosis a mum could ever hear'

With a diagnosis shared by an estimated five other children in the UK, little Myles Hughes’ future is terrifyingly uncertain at just six years old. The little boy was born deaf and with a dislocated left hip, but it wasn’t until he was two that mum Georgia, 28, grew increasingly concerned.

Myles’ teeth were knocked out after a fall and, when they didn’t grow back as scheduled, Georgia knew something was wrong. It was one of the first signs of 4H leukodystrophy – a rare genetic disorder that affects the nervous system and causes motor problems.

It has also affected Myles’ growth, with the six-year-old still wearing clothes to fit a 12-month-old baby. There is no known cure, and many children with the condition

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