A woman with a rare and debilitating genetic condition is picking music for her funeral aged just 28, her wife has said.

In summer last year, Nicola Down was determined to walk down the aisle without the use of her wheelchair and put her mobility aid aside as she celebrated her "perfect" wedding to her partner of six years, Chloe.

But within a few short months, her health plummeted, leaving her "in a different world" as she receives round-the-clock care in a hospital bed, unable to eat or speak, and forced to communicate through hand-written notes.

Her wife Chloe, 30, said: "She's no longer able to eat or drink. She struggles massively with mobility. She can barely speak. Now she struggles even with a whisper, so communication is very difficult for her. It's difficult to see the decline

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