When Domenic Catrine was born, his heel swelled up from his vitamin K shot. His circumcision site wouldn't stop bleeding.

At the Children's Hospital of Philadelphia, Catrine was diagnosed as having hemophilia, a rare blood disorder that impairs clotting and can cause serious and even life-threatening bleeds. MORE : Women are more likely than men to have depression, and genetics may play a big role in that disparity

"I didn't know what hemophilia was," said Catrine's mother, Brianna Borden. "I didn't know how to manage it. I didn't know anything."

Borden said she felt completely overwhelmed.

To protect his head against brain bleeds, Catrine, now 21, had to wear a helmet from the time he was a toddler through elementary school. To help his blood clot, he received intravenous infusions

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