A new law in New York will create a statewide registry that will help track and raise awareness of frontotemporal degeneration, one of the least understood forms of dementia.

The legislation was sponsored by state Sen. Michelle Hinchey and Assemblymember Amy Paulin. Gov. Kathy Hochul signed it into law.

The bill passed both houses of the state Legislature unanimously during the 2025 session.

The law will establish a statewide system to track diagnoses of frontotemporal degeneration (FTD) in New York.

Hospitals and health care providers will be directed to report cases to the state Health Department, which will then create a portal with data on the incidence and prevalence of FTD.

Frontotemporal degeneration often takes nearly four years to diagnose, according to Hinchey’s office . I

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