Children with brain tumours face “uneven” NHS care depending on where they live, according to a new report.
The Tessa Jowell Brain Cancer Mission conducted a review of the UK’s paediatric neuro-oncology system, examining 15 out of 17 services.
The organisation in her name has identified gaps in the care children with brain tumours may face.
The report highlights a number of concerns about testing, wraparound care and a lack of access to clinical trials in some parts of the country.
Findings include:
– Concerns over delays in genetic testing and whole genome sequencing.
– Shortages of rehabilitation staff in some centres and particular concerns about access to specialist rehabilitation for children who lived far away from the hospital.
– Only half of patients had access to a play spe

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