BROOKE Eby has given her followers a very solemn update on her rare health battle.

In a new video posted to Instagram and TikTok, the ALStogether charity founder and influencer, 36, said her prognosis is "not good" after testing this week.

Brooke, who was diagnosed with terminal degenerative nervous system disease ALS in 2022 after battling mysterious muscular symptoms for years, said her latest doctor's appointment was a "bust."

After visits with a variety of specialists, she saw her neurologist.

"It was strange," she shared on Thursday, September 11.

"The only thing she had me do is, she said, 'Let me see your tongue,' and so I stuck out my tongue and she said, 'Your tongue is great.' Not the first time!" she joked, keeping her humor despite the bad news.

Then Brooke, who uses a

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