KANSAS CITY, Mo. -- Sometimes the smallest heroes have the biggest hearts.

A local family thought they were planning a simple parade for their 3-year-old son, but what happened next was something no one could have imagined.

Tucker Langord was born with a rare genetic disorder called Dystrophic Epidermolysis Bullosa (EB), also known as “butterfly skin." It makes even a gentle touch extremely painful.

"He was born with recessive Dystrophic Epidermolysis, and we had no clue that he would have this," his mom Chandler Langford said. "I had a normal pregnancy. Everything went smooth, and then when he was born, he was missing skin on his both of his feet, his chest, his lips and his fingers."

Doctors warned Tucker's parents early on that he might not live to see his first birthday, but he's d

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