Exclusive | My infant son died of a rare disorder — I wish doctors had run this cheap test sooner

Jordan Kruse realized something was wrong with her newborn, Pruitt, hours after bringing him home from the hospital last year.

“He started to refuse nursing,” Kruse, 32, told The Post. “You’re supposed to nurse [newborns] every two hours, so that was my first sign.”

What followed is every new parent’s biggest fear — the South Dakota infant became extremely sick with a rare, inherited metabolic disorder and died at just 6 months old .

As they approach the first anniversary of Pruitt’s death, the Kruse family is continuing to raise awareness about ornithine transcarbamylase (OTC) deficiency and pushing hospitals to prioritize early ammonia testing in symptomatic newborns in the hopes of preventing other devastating deaths.

“Our hospital … changed their protocol,” Kruse said. “That’s so