Dear President Donald Trump ,

My name is Kelly Stacy. I am a mother of four sons, two of whom, Elijah and Kai, are still living with Duchenne muscular dystrophy, a rare and fatal disease that steals their ability to walk at the earliest of ages, their independence by their teenage years, and their life by their 20s.

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Three of my four sons inherited Duchenne, and now I face Stage IV pancreatic cancer. It is a cruel lottery no one talks about, but it is all too real for families such as mine.

I am not writing to ask for anything for myself. I am writing because my time is short, and I need to know I did everything in my po

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